Children and young people support

4 to 10 year olds

We have three stories to share about families and MND. You can order a free copy of the storybook from: 0808 802 6262 or mndconnect@mndassociation.org.

MND Buddies

Our MND Buddies can help you find out about MND. You can send in artwork and writing to their See it page, if you feel creative!

Head to their Meet us page first. Find them whenever you need to, at www.mndbuddies.org.

Treasure box

Our free Treasure box contains a range of activities to help you collect stories about someone with MND.

For more information about the Treasure box, contact  0808 802 6262 or cyp@mndassociation.org.

For more information on the support we provide for children aged 4 to 10, please visit https://www.mndassociation.org/support-and-information/children-and-young-people/children-aged-four-to-ten/

Young people aged 11 to 18

Find support if you're aged 11-18 and you're close to someone with motor neurone disease (MND). You're not alone - we're here to help.

Useful organisations and contacts

We are able to signpost you to a variety of organisations who can provide you with urgent support and emotional support to help you with MND.

For more information on the support available, please visit https://www.mndassociation.org/support-and-information/children-and-young-people/young-carers-hub/support-for-young-carers/

Getting involved

We have loads of fundraising activities that you could get involved in, from sponsored walks and marathons, to fun days or baking events.

If you're over 16 and you'd like to help people living with MND get the support they need, you may enjoy becoming a young campaigner or young volunteer.

For more information on getting involved, please visit https://www.mndassociation.org/support-and-information/children-and-young-people/young-carers-hub/get-involved-as-a-young-carer/

Parents and guardians

Explaining MND to children

It's natural to want to protect children from distress, but change is visible with MND Finding the right words to explain MND to children can be difficult, but we provide a range of resources and reading lists to help:

• see our guide Telling people about MND for ways to open difficult conversations, including with children and young people

• see the option for Families, carers and children in our information for people with or affected by MND

check our list of useful organisations and internet sites for services that support children and young people.

For more information on the support available, please visit https://www.mndassociation.org/support-and-information/children-and-young-people/